Letters to Friends #2 – First Signs of Fibro
Thanks for checking on me the other day. You asked about my first signs of Fibro. As you know, I had disembarkment disorder after our cruise to the Bahamas in February 2011 (which has never gone away), follow by neck pain and then I was hit suddenly with extreme, contracting back pain in September.
But as I have learned more about Fibromyalgia, it seems there have been several signs of it from early in my life. Do you remember all those chest pains I had in middle school and high school? [See this story in my memoirs. “Raised in a Barn”] They could never find anything wrong so they called it growing pains. Ha! If that were so I’d be about 6 foot tall! Anyway, it turns out that many of us fibro warriors have experienced “growing pains” at puberty. So my first signs of fibro were probably chest pains at 11 or 12 years of age.
Always Just so Tired
It has also dawned on me that one major symptom of fibromyalgia is fatigue, tired for no particular reason. I got to thinking that I have always been tired. I would get so tired from a shopping trip or band event. I would fall into a deep sleep immediately after arriving home from any kind of event. Really, I would fall asleep as soon as I got still. Remember the jokes about me not be a good co-pilot when we moved from Ohio to Wisconsin? I would sleep the entire way! When they finally realized I had thyroid issues, I thought that was the answer. And while the medication does keep everything stable, I still feel like there are more issues than what is being addressed.
All My Life
So evidently, I have had fibromyalgia nearly all my life. It’s just that the cruise somehow awakened the monster.
Thanks so much for taking an interest in my life. I know you feel that your hands are tied because you live so far away, but believe me, your frustration would be the same if you lived next door. Your prayers and calls mean so much to me. It would certainly be nice though if we were closer. Then at least you could come visit. But I would miss that even if I weren’t ill.
This is the second in a series of letters written to friends to explain the issues of fibromyalgia. Go to the introductory page for Letters to Friends to read what you have missed by clicking here.
This letter was inspired by Kate Motaung’s prompt this week, “TIRED” at Five Minute Fridays.