Fibromyalgia

Fibromyalgia : It’s All in Your Head?

It’s All in Your Head.

Fibromyalgia sufferers have all heard  that before. It’s been a long row to hoe having unexplainable pain. It’s so frustrating when others take it all so lightly, but you are suffering beyond explanation.

However, in a way, it is in your head our brains, that is.

Reminder:  I just want to say that I am a patient, not a doctor. What I am sharing comes largely from what my doctors taught me and what I have discovered in my own searching.

I am sharing to hopefully help you be informed enough to support friends with this syndrome or possibly acquire informed questions for your doctor. Please talk with your doctor or visit the Mayo Clinic website for official information, diagnosis, and treatment.

Remember those receptors I shared about? The broken ones that “tell lies to your brain”. Yes, misinformation is getting to your brain. So, unfortunately, it IS in your head. They are still studying to try to find out why it happens and how to fix it.

But there’s a little good news…

Studies are finding that we can re-train our nerves to send the correct message. Maybe you learned in the past how veins and arteries will divert themselves and create new paths around a blood clot. Well, guess what, your nerves can do this too. We just have to re-train them. I’m not a scientific person so I will get some help here to explain this.

Here is a Brainworks Instructional Video to help explain

 

For the Caregiver and Friends

Please remember that the pain you friend is experiencing is very real. Getting past that pain is a formidable feat. It will take time and encouragement from you.

  1. Affecting our thinking is very important. This is why I previously mentioned to you DO NOT ASK YOUR FRIEND HOW THEIR PAIN IS. It makes them think about it. Some of my most difficult times have been at church when people ask me how my pain is. I may have been going along just fine, but when I  talk about it, it intensifies the pain and soon tears are flowing. Talk about other interests or activities.
  2. Allow them to bring it up on their own but don’t let the conversation stay there long. Try to change the subject whenever the discussion of pain becomes too heavy. I’m not saying you shouldn’t be interested if they want to talk but don’t let it stay there long. Find something else to talk about.
  3. Don’t treat them like an invalid. Someone with fibromyalgia needs to stay active. If they stop activity it will begin the downward spiral of more pain.
  4. Moderation. At the same time, too much activity can cause a “crash” where the next day they can’t function at all. So do activities together, but in moderation. Don’t push them to do too much. Or, if they are like me, remind them to stop before they regret it. When I have a good day, I tend to over do it.

 

Feeling Your Pain;

Mandy Farmer

 

 

 

 

 

 

 

 

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SOURCES

Mayo Clinic – Treatments and Drugs

BrainWorks

Fibromyalgia National Coalition Butterflies – Facebook Page

National Fibromyalgia and Chronic Pain Association – How to Be a Better Spouse